Able and Disabled

Hey! I hope you've had a great week and if you were involved I hope you had a fab Autism Awareness Week! Today I wanted to talk about autism again because something I experience a lot, including recently, is people questioning how autistic I am. Quite often the way it's worded isn't suggesting that I'm not autistic but rather that I'm not THAT autistic, which is still frustrating because it can feel like the ways in which I do struggle are being undermined. Today I thought I'd talk about why this might be an impression that some people have of me and why it can be SUPER annoying! First, different people see different sides of me. This can be for a number of reasons; how close we are, what kind of situations we experience together and how often we see each other. Masking is a common trait among those on the spectrum. It's not so much that we're being fact, we're still us, but simply that we might be focusing really hard on things such as social sk...

Hey! I hope that everyone, both those who are neurodiverse and those who are not, is having an awesome Autism Awareness Week! This week is a great opportunity to share and hear many amazing stories from those on the spectrum, and potentially learn something new whether you are autistic or not! Today, at the halfway mark of the week, I thought that I would share a slightly fuller story of my experience with autism as an autistic person who was diagnosed less than a year ago. Around the time of my diagnosis I did share what that process was like for me. However, many of those who received later ASC (Autism Spectrum Condition) or ASD (Autism Spectrum Disorder) diagnosis will tell you, your story is never quite as simple as having a suspicion, seeing a doctor and being diagnosed. That is what I wanted to talk about today. (Freya is 12 years old and standing in a rock pool, looking rather cold) In my diagnosis post I spoke about seeing a doctor about my experiences during sixth f...

Hey! Hope you are well! Sorry for the short break, things are really tough at the moment but I am working on getting help. But I'm back, and just in time for Autism Awareness Week! This last year, following my own diagnosis of ASC (Autism Spectrum Condition) last summer, autism has kind of become it's own special interest for me. This isn't uncommon from what I've heard of other's diagnosis experiences, many of us on the spectrum enjoy intense research and figuring things out and a diagnosis which could help to explain a lifetime of difficulties is a big deal. A big part of this year has been figuring out what autism means for me and raising awareness to the fact that I am autistic to those around me, both for my own sake and for the wider community. My first AAW has come at a weird time for me. My mental health is in a very difficult place right now, as I continue to struggle with depression and anxiety as well as the consequences of how I deal with these conditi...

Hey! Sorry that it's been a hot second. Things have a bit a lot lately and I've been find it really tough. Part of this has been my struggle with the mental health system. My mental health has suffered lately, bringing my depression to the centre of my health struggles as my biggest challenge. It's been hard and perhaps the hardest part has been feeling unable to access the support I need. Don't get me wrong, I am INCREDIBLY grateful for the NHS and to live in a country where there are a lot of free options for medical help, but that doesn't mean that the system is perfect. Trusts are uncommunicative, waiting lists are exceedingly long, choices of types of mental health support can be limited. It can often feel like you need to be on the brink before you can access help, as though treatment is retrospective rather than preventative. The government can say that they are increasing funding in the mental health sector and that they are doing all they can to fight s...

Hey! So the last six months have flown by and here we are, I have officially graduated from the Scope For Change Programme. The graduation itself was amazing! It was wonderful to see so many of my awesome friends again and to hear from some great guest speakers, especially Sam Renke who is absolute activism goals! However, today I thought I would focus on the programme itself and what I've taking away from it because I feel so grateful and blessed to have been given this opportunity to grow and work with so many fabulous people. (Freya accepting her certificate for completing Scope For Change) How to put Scope For Change into words? Inspiration, Friendship, Encouragement, Support; it's so difficult to sum up such a huge experience into such few words. To help I thought I would share with you the speech I gave at the Graduation on the 14th (such a lovely way to spend Valentines Day, it was wonderful!): Hello, my name is Freya. I’m a twenty year old student studying Ti...

Hey! Hope you are well. I've been pretty overwhelmed recently but today I wanted to discuss the access to BSL (British Sign Language) within our community. I've personally wanted to start learning BSL for sometime now, but along with being busy it's difficult to know my place within this particular space. BSL isn't just for the severely deaf but is used by many within the hard of hearing community who may struggle with clarity or understanding. Furthermore, sign language can be used by many without hearing problems but who struggle with communication for any reason, such as those living on the autistic spectrum. My hearing loss is mild. In 1:1 conversations or when I'm watching something on my own I can cope without my hearing aids. However, in loud or heightened social situations I can definitely struggle to gain clarity and fully know what is going on around me. In these kinds of circumstances knowing some basic BSL and being able to share that knowledge with ...

Hey! I hope you are well and having a fantastic 2019 so far! I can't believe that we are already halfway through the first month of the year! Today I wanted to talk about cerebral palsy, a topic I haven't focused very much recently. Even though cerebral palsy affects me in many ways every single day, I no longer receive regular medical attention for this particular facet of my disability and not a lot changes in my condition. For this reason I perhaps talk about cerebral palsy a little less; it's the diagnosis I've lived with the longest and is the most stagnant. However, I recently made the decision to purchase myself a walking stick and thought this may be a good experience to share. As I have already mentioned, I don't really see any doctors or other medical professionals on the basis of cerebral palsy anymore, meaning that the decision to get a stick was entirely my own. I don't think that this fact makes my decision or use of a walking stick any less va...

Hey! Hope you are well! Sorry for the slight break in posts over Christmas, I just felt that following some of my difficulties at the end of last term I needed that time to take care of myself and relieve some of the pressure I felt under. Now I am back and I'm looking forward to a whole new year of content and conversation, especially since there will be so much to talk about, such as my year abroad and turning 21! It looks as though there will lots of new, exciting things happening on this blog in 2019! Mental health and the new year is what I wanted to talk about today. New Year's Resolutions are always an interesting topic; some people make them and some people don't, some people stick to them and some people abandon them. My New Year's Resolutions last year were very focused upon work and productivity. My focus was mostly upon getting a job, saving money and specific grade goals, and while all these goals were incredibly important at the time and I still want t...

Hey All! Sorry for my absence last week. Things haven't been overly easy recently and I needed to focus on coping with the basics for a little while but today I'm back to have an honest chat about the importance of speaking out about mental health, why this can be difficult and why it is especially important not to feel bad for struggling. Over the last term I have been struggling, both with individual circumstances and with my mental health but I really want to work on my self-compassion and being open when I am having a difficult time. Ultimately that is exactly the kind of thing that all my work on here and with #InvisiblyValid is all about, overcoming stigma and feeling valid in our experiences. Having found myself struggling with anxiety and mood related issues throughout my life I have and still do experience the difficulties attached to being open about your mental health struggles. I think it's especially important to recognise that stigma isn't overcome onc...

Hey All, Unsurprisingly, following my diagnosis in the summer autism has become sort of its own special interest in my life. This is an experience which I have heard a few different people talk about online and it is my opinion that this comes from our instinctive need to research and understand. At least personally the way I process things is often by learning about them, meaning that the way I process is often less emotional and more informative. For this reason I have read a lot of books about autism in the months after my diagnosis. I think that this way of processing the diagnosis is more common than we may think, a fact that is suggested to me in part because I was actually recommended a few different books on my diagnosis letter. I have read several books and have found helpful parts in all of them, whether they be fiction, non-fiction or more of a memoir. However, I recently read 'Odd Girl Out' by Laura James and this was a book that I not only found useful but also f...

Hey All! I hope everyone is well! For those of us at university term one is now in full swing. At this point it is easy and understandable to start feeling a little overwhelmed. I know that with both university and work, I have found myself experiencing an increase in instances of overload, particularly as a student with autism. It is often part of student and autistic nature to want to push through the overload, meltdowns and shutdowns and keep on working but too often this is actually the worst thing you can do. Sure, you need to keep on top of assignments and due dates but it is also important not to push yourself too far because if you burn out it is likely you'll struggle to do anything at all. As an autistic individual I find myself often seeking and relying upon routine and plans. In order to prevent myself overwhelmed and make sure that everything gets done I've been creating weekly schedules for myself, containing my classes, shifts and the work I need to do at hom...

Hey All! Sorry for the delay in posting, it's been kind of a hectic week! That's actually part of why I've chosen to talk about 'Functioning Labels' today. Both those within and outside of the autistic community will be aware of the phrases 'High Functioning' and 'Low Functioning' but less people will probably be aware of the controversy surrounding them. I've heard several different people define these terms several different ways. Some people use quite a broad definition of 'High Functioning,' using it to mean anyone they deem to be 'coping,' while others seem to use a very specific definition as a reference to average IQ and the ability to talk. Regardless of the exact intended meaning of these phrases many of us believe them to be outdated and unhelpful. There are two primary problems with the use of 'Functioning Labels' and this is what I wish to discuss. Firstly, we don't always feel 'High Functioning....

Hey All! Hope you are all well! I now this post is coming to you a little early, with my weekly posts normally going on Wednesdays, but I thought I would give a little extra reading this week! I'm not entirely sure whether that is in fact a positive way of wording it but oh well, I have something really exciting to talk about today! As regular readers will know in June I became involved in an awesome project called 'Scope For Change.' 'Scope For Change' is a six month programme aimed at training young adults to become disability campaigners and at helping them set up their initial campaigns. Following the Launch Event in June, this weekend was the Residential, a REALLY fun weekend of both activities and talks, both of which were designed to bring us even closer together as a group and help us further consider what we want our campaigns to be. I thought I would post today to tell you a little about my experience of the Residential and the kind of direction in whi...

Hey All! As mentioned in my blog post this time last week I was preparing for a day out that would be the first step of an amazing opportunity! The big news I had been keeping under wraps was in fact that I have been chosen to participate in this years 'Scope for Change' programme, a six month project that will give me the skills to be an even more capable and avid activist for the rights of disabled folks. The purpose of this programme is to provide me with the networks and techniques to be an influential campaigner. Many involved within the UK Disability community will be more than aware of the work and significance of Scope as a leading national charity, meaning that excited does very little to describe how I feel about the prospect of this mind-blowing opportunity! My personal reasoning for participation in the programme, as a large proportion of my Facebook friends will know, is because I want to help create a world in which everyone finally understands that not all im...